Publisher
source

Amsterdam UMC

PhD in Quality of Life and Resilience in Leukodystrophy Amsterdam UMC in Netherlands

Degree Level

PhD

Field of study

Psychology

Funding

Full-time 3-year employment contract with the University Hospital Tübingen. Salary, mobility allowance, and benefits according to MSCA Doctoral Network and host-organisation rules.

Deadline

Oct 5, 2026

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Country

Netherlands

University

Amsterdam UMC

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Keywords

Psychology
Medicine
Longitudinal Study
Quality Of Life
Salud Pública
Pediatric Neurology
Resiliency
Rare Disease
Patient-reported Outcome
Psychometric

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About this position

MSCA Doctoral Network PhD opportunity in quality of life, resilience, leukodystrophy, patient-reported outcomes, psychology, medicine, and public health within the POLARIS consortium.

The project focuses on improving how quality of life is measured in leukodystrophy, a group of rare genetic disorders affecting the brain’s white matter. The research combines qualitative and quantitative methods to evaluate existing measures, develop and validate a new tool for patients and families, and study risk and resilience factors linked to parental distress, coping, and long-term outcomes.

The position is embedded in the POLARIS doctoral network, which brings together expertise in leukodystrophy biology, advanced disease models, therapeutic innovation, biomarker development, clinical translation, patient engagement, and ethical/regulatory/health-economic aspects of therapy development. The successful candidate will work with clinicians, psychologists, methodologists, patient representatives, and researchers across the consortium.

Work is based in Tübingen, Germany, with academic enrolment through the Eberhard Karls University of Tübingen. Planned secondments at the University of Oulu and the Anna Freud Centre will provide experience in digital quality-of-life assessment and psychosocial research. The project also involves engagement with the European Leukodystrophy Association and other patient organisations.

Eligibility highlights: a Master’s degree or equivalent in psychology, medicine, health or nursing sciences, public health, rehabilitation sciences, epidemiology, or a related social/behavioural/biomedical field; strong empirical research and applied statistics background; English proficiency; and MSCA mobility/doctoral eligibility rules. Experience with psychometrics, questionnaire development, longitudinal or multilevel modelling, qualitative or mixed-methods research, Delphi methods, and R/SPSS/Stata is advantageous.

Funding: full-time 3-year employment contract with salary, mobility allowance, and benefits according to MSCA Doctoral Network and host rules.

Deadline: 5 October 2026, 21:59 UTC. Apply via the linked AcademicTransfer/Euraxess portal.

Funding details

Full-time 3-year employment contract with the University Hospital Tübingen. Salary, mobility allowance, and benefits according to MSCA Doctoral Network and host-organisation rules.

What's required

Master's degree or equivalent qualifying degree, including a medical degree, in psychology, medicine, health or nursing sciences, public health, rehabilitation sciences, epidemiology, or a related field in the social, behavioural or biomedical sciences; solid foundation in empirical research methods and applied statistics; interest in measuring subjective and patient-reported outcomes; good analytical, organisational and academic writing skills; ability to work independently and collaborate across disciplines; proficiency in English. Experience with questionnaire or instrument development, psychometrics, longitudinal or multilevel modelling, qualitative or mixed-methods research, or Delphi consensus methods is an advantage. Working knowledge of R, SPSS or Stata is expected. Experience with children, families, or people with chronic or rare diseases is also an advantage. MSCA eligibility applies: no doctoral degree yet, and limited residence/activity in Germany in the three years before contract start.

How to apply

Apply via the AcademicTransfer/Euraxess application link. Submit your application by 5 October 2026 and mention up to two additional POLARIS projects of interest in your application letter if relevant. For substantive questions, contact Samuel Groeschel by email.

More information can be found here

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