Claire E. Henry
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Articles (11)
Objective To explore the experiences of care surrounding hysterectomy as part of gender affirming surgery. Methods An in‐depth reflexive thematic analysis from accounts by 10 out of 12 people was undertaken. Experiences were then mapped to the surgery journey as a template for developing system responsiveness. Results No one person's experience of the procedure was affirmed across the entire surgery journey. Transgender health literacy was central to inclusive practice as it mediated bodily autonomy being upheld. The physical care environment influenced the experience, for example, the waiting room was marginalizing (intimidating), with a gendered clinic name and toilets. Some participants took a female support person/partner so that “people looking would assume that I was there supporting her, not the other way around.” Communication misalignments were evident around information provided/understood about fertility and ovarian preservation. Participants were also placed in the position of both receiving care and providing education: “I also shouldn't have to be going in there for treatment, and then being expected to educate the medical professional that's meant to be helping me… I'm not getting paid to give you a TED talk on how my trans body works.” The experiences mapped across the surgery journey highlighted multiple levels of service provision development needed to foster inclusive practice, for example, from workforce education to healthcare policy. Conclusion Healthcare for transgender people can be unsafe and inequitable. Increasing transgender health responsiveness across the surgery journey will facilitate better alignments in communication and uphold bodily autonomy, leading to safer and inclusive practice.
Year:
2024
Year:
2024
Year:
2024
Year:
2024
Year:
2023
Introduction Endometriosis is an under‐researched disease, with Aotearoa‐specific data severely lacking. Current estimates of parameters such as rates of endometriosis diagnosis, indication for surgery and sites of disease are based on international data. There is currently no published data on endometriosis surgeries in Aotearoa New Zealand. Aims We aimed to describe the laparoscopic surgeries conducted for suspected endometriosis at Te Whatu Ora – Capital and Coast, including the prevalence of endometriosis in this cohort, indication for surgery, symptoms experienced, endometriosis stage and sites involved, number of repeat laparoscopies, and prevalence of endometriosis at repeat surgery. Materials and methods To conduct this retrospective cross‐sectional study, data were extracted from Te Whatu Ora – Capital and Coast systems to identify all records indicating surgery for suspected endometriosis during 2018 and 2019. Variables investigated included age, ethnicity, endometriosis diagnosis (International Classification of Diseases‐10 Clinical Modification coding), stage of endometriosis, histological report and endometriosis symptoms (pain and/or fertility). Results There were 436 surgeries for suspected endometriosis performed during 2018 and 2019, and endometriosis was diagnosed in 68.3% of these surgeries. Pacific and Asian people were under‐represented in the study cohort compared to the demographics of the hospital catchment area (Pacific: 3.0% vs 8.4%, Asian: 9.9% vs 12.9%). The most common indication for surgery was pain. There were 76 surgeries performed for suspected recurrence of endometriosis, and endometriosis was identified in 55.6% of these. Conclusions Endometriosis surgeries in this hospital in Aotearoa show similar presentations and surgical findings to international data. Our findings highlight areas requiring more research in an Aotearoa‐specific context.
Year:
2023
Year:
2023
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2023
Year:
2022
Year:
2021
Year:
2021
Collaborators (6)
Kirsty Danielson
University of Otago
Sara K. Filoche
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Rebecca Grainger
University of Otago
Tehmina Gladman
University of Otago
Cherie Blenkiron
University of Auckland
Jane Girling
University of Otago
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