Clare Ellis-Smith

King’s College London

United Kingdom

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Articles (20)

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2025

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2021

Collaborators (16)

Elizabeth Sampson

University College London

UNITED KINGDOM

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NANAKO NISHIYAMA

Assisstant Professor

Osaka University

JAPAN

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Isabel Sophie Burner-Fritsch

GERMANY

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Ariel Wang

University of Oxford

UNITED KINGDOM

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Nathan Davies

University College London

UNITED KINGDOM

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Takahiro Higashibata

Lecturer

University of Tsukuba

JAPAN

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Anna Bone

Lecturer in Epidemiology and Palliative Care

King’s College London

UNITED KINGDOM

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Richard Harding

King’s College London

UNITED KINGDOM

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Debbie Braybrook

King’s College London

UNITED KINGDOM

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Katherine Rachel Bristowe

King’s College London

UNITED KINGDOM

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Jonathan Koffman

Professor of Palliative Care

Hull York Medical School

UNITED KINGDOM

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Jun Hamano

Lecturer

University of Tsukuba

JAPAN

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Myra Bluebond-Langner

University College London

UNITED KINGDOM

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Hannah Scott

King’s College London

UNITED KINGDOM

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Catherine Evans

King’s College London

UNITED KINGDOM

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Lorna Katharine Fraser

King’s College London

UNITED KINGDOM

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Clare Ellis-Smith

Research Interests

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Articles (20)

Family-Integrated Advance Care Planning for Cancer Patients: A Mixed-Methods Feasibility Study

Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care

Implementation, Processes and Outcomes of Advance Care Planning: A Culturally and Contextually Appropriate Programme Theory Developed in Chinese Long-Term Care Facilities

What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents

Co‐Designing a Palliative Dementia Care Framework to Support Holistic Assessment and Decision Making: The EMBED‐Care Framework

Co‐design of the EMBED‐Care Framework as an intervention to enhance shared decision‐making for people affected by dementia and practitioners, comprising holistic assessment, linked with clinical decision support tools: A qualitative study

Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers

Development of a child and family centred outcome measure for children and young people with life-limiting and life-threatening conditions: progress to date on the Children’s Palliative Care Outcome Scale (C-POS:UK)

The Use of Person-Centered Outcome Measures to Support Integrated Palliative Care for Older People: A Systematic Review

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

How do person-centered outcome measures enable shared decision-making for people with dementia and family carers?-A systematic review

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

COVID-19: Impact on Pediatric Palliative Care

Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review

Mechanisms and contextual influences on the implementation of advance care planning for older people in long-term care facilities: A realist review

Culture in the spotlight—cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study

Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review.

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools

Preferences and priorities to manage clinical uncertainty for older people with frailty and multimorbidity: a discrete choice experiment and stakeholder consultations

Collaborators (16)

Elizabeth Sampson

NANAKO NISHIYAMA

Isabel Sophie Burner-Fritsch

Ariel Wang

Nathan Davies

Takahiro Higashibata

Anna Bone

Richard Harding

Debbie Braybrook

Katherine Rachel Bristowe

Jonathan Koffman

Jun Hamano

Myra Bluebond-Langner

Hannah Scott

Catherine Evans

Lorna Katharine Fraser

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