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Clare Ellis-Smith

King’s College London

United Kingdom

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Research Interests

Health Communication

40%

Health Economics

50%

Person-centered Care

60%

Advance Care Planning

50%

Compassionate Care

40%

Care Management

30%

Patient Perspective

30%

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Articles20

Family-Integrated Advance Care Planning for Cancer Patients: A Mixed-Methods Feasibility Study

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Year:

2025

Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care

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Year:

2025

Implementation, Processes and Outcomes of Advance Care Planning: A Culturally and Contextually Appropriate Programme Theory Developed in Chinese Long-Term Care Facilities

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Year:

2025

What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents

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Year:

2025

Co‐Designing a Palliative Dementia Care Framework to Support Holistic Assessment and Decision Making: The EMBED‐Care Framework

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Year:

2024

Co‐design of the EMBED‐Care Framework as an intervention to enhance shared decision‐making for people affected by dementia and practitioners, comprising holistic assessment, linked with clinical decision support tools: A qualitative study

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Year:

2024

Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers

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Year:

2024

Development of a child and family centred outcome measure for children and young people with life-limiting and life-threatening conditions: progress to date on the Children’s Palliative Care Outcome Scale (C-POS:UK)

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Year:

2024

The Use of Person-Centered Outcome Measures to Support Integrated Palliative Care for Older People: A Systematic Review

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Year:

2024

What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders

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Year:

2024

How do person-centered outcome measures enable shared decision-making for people with dementia and family carers?-A systematic review

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Year:

2022

Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

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Year:

2022

COVID-19: Impact on Pediatric Palliative Care

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Year:

2022

Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review

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Year:

2022

Mechanisms and contextual influences on the implementation of advance care planning for older people in long-term care facilities: A realist review

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Year:

2022

Culture in the spotlight—cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study

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Year:

2021

Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review.

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Year:

2021

Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality

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Year:

2021

Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools

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Year:

2021

Preferences and priorities to manage clinical uncertainty for older people with frailty and multimorbidity: a discrete choice experiment and stakeholder consultations

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Year:

2021

Collaborators16

Elizabeth Sampson

University College London

UNITED KINGDOM

NANAKO NISHIYAMA

Assisstant Professor

Osaka University

JAPAN

Isabel Sophie Burner-Fritsch

GERMANY

Ariel Wang

University of Oxford

UNITED KINGDOM

Nathan Davies

University College London

UNITED KINGDOM

Takahiro Higashibata

Lecturer

University of Tsukuba

JAPAN

Anna Bone

Lecturer in Epidemiology and Palliative Care

King’s College London

UNITED KINGDOM

Richard Harding

King’s College London

UNITED KINGDOM

Debbie Braybrook

King’s College London

UNITED KINGDOM

Katherine Rachel Bristowe

King’s College London

UNITED KINGDOM

Jonathan Koffman

Professor of Palliative Care

Hull York Medical School

UNITED KINGDOM

Jun Hamano

Lecturer

University of Tsukuba

JAPAN

Myra Bluebond-Langner

University College London

UNITED KINGDOM

Hannah Scott

King’s College London

UNITED KINGDOM

Catherine Evans

King’s College London

UNITED KINGDOM

Lorna Katharine Fraser

King’s College London

UNITED KINGDOM

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