Hajo. M. Hamer
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Articles (10)
Year:
2023
Objective Discrimination against persons with epilepsy (PWEs) may persist. The aim of this study was to examine whether epilepsy is an obstacle to desired friendship. Methods A factorial survey (vignettes), which is less biased by social desirability, was applied to PWEs, their relatives, and lay persons. The vignettes described a person who was varied by the dimensions of age (younger, same age, older), gender (male, female), disease (healthy, mild epilepsy, severe epilepsy [generalized tonic–clonic seizures], diabetes), origin (German, non‐German), contact (phone/internet, activities at home, activities outside), frequency of contacts (weekly, monthly), and distance (around the corner, 10 km away). Respondents rated their willingness to befriend the person on a 10‐point Likert scale. Multivariate regression determined the contribution of each dimension on the judgment. Results Participants were 64 PWEs (age = 37.1 ± 14.0 years), 64 relatives of PWEs (age = 45.1 ± 13.6 years), and 98 controls without contact with PWEs (age = 24.4 ± 10.1 years). Controls were less interested in a friendship with a PWE with mild epilepsy (−3.4%) and even more avoided PWEs with severe epilepsy (−11.7%), whereas in PWEs with tonic–clonic seizures, a mild form of epilepsy was actually conducive to friendship (+7.0%). Controls preferred females (+5.0%) and disliked younger people (−12.3%) and contacts via the internet or telephone (−7.3%). PWEs were also less interested in younger people (−5.8%), and relatives of PWEs had a lower preference for friendships with longer distance (−2.3%). Significance PWEs still suffer from a risk of social avoidance, and this becomes more evident with generalized motor seizures.
Year:
2023
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2023
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2022
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2021
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2021
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2021
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2021
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2021
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2021
Collaborators (5)
Marije ter Wal
Delft University of Technology
Bernhard Staresina
University of Oxford
K Roessler
Medical University of Vienna
Peter Kriwy
Chemnitz University of Technology
Gyorgy Buzsaki
Biggs Professor of Neuroscience, Physiology and Neurology
New York University
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