Sophie Strobl

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Researcher, Lecturer

Sigmund Freud PrivatUniversität Wien

Austria

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About

Sophie Strobl is a researcher and lecturer at Sigmund Freud University Vienna, Austria. Her research primarily focuses on the physical, emotional, social, and functional dimensions of epidermolysis bullosa, emphasizing the psychosocial impact of this chronic disease. She has contributed to various studies on patient perspectives, quality of life assessments, and the development of assessment instruments for clinical outcomes in epidermolysis bullosa.

Recent Grants

Grant: Open

Visions of quality of life with a rare disease. A transdisciplinary approach to identify, measure and improve quality of life with epidermolysis bullosa

Open Date: 2024-09-01

Close Date: 2027-08-01

Articles (9)

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2025

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2025

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2024

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2024

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2024

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2024

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2024

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2024

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2024

Collaborators (1)

Gudrun Salamon

TU Wien

AUSTRIA

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Sophie Strobl

Research Interests

Explore related searches

Contact this professor

About

Recent Grants

Articles (9)

The physical, emotional, social, and functional dimensions of epidermolysis bullosa. An interview study on burdens and helpful aspects from a patients' perspective

The physical, emotional, social, and functional dimensions of epidermolysis bullosa. An interview study on burdens and helpful aspects from a patients’ perspective

Psychometric Properties of the Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa patient score (iscorEB-p): a patient-reported outcome measure

The psychosocial impact of a chronic disease in Ireland: Burdens and helpful practices for a life with epidermolysis bullosa

Facing the complex challenges of people with epidermolysis bullosa in Austria: a mixed methods study on burdens and helpful practices

Translation, cultural adaptation and validation of the German Quality of Life in Epidermolysis Bullosa (QOLEB) questionnaire

The psychosocial impact of a chronic disease in Ireland: Burdens and helpful practices for a life with epidermolysis bullosa

Facing the complex challenges of people with epidermolysis bullosa in Austria: a mixed methods study on burdens and helpful practices

Psychometric Properties of the Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa patient score (iscorEB-p): a patient-reported outcome measure

Collaborators (1)

Gudrun Salamon

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