Stefania Vicari

Has grant

University of Sheffield
Country flagUnited Kingdom

Research Interests

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Recent Grants

Grant: Close

Twitting rare diseases on and off the Jolie effect.

Open Date: 2016-01-01

Close Date: 2017-01-01

Grant: Close

Bridging the gap between patients and carers : The case of rare disease patient-advocacy actors.

Open Date: 2013-05-01

Close Date: 2014-04-30

Grant: Close

Bridging the gap between patients and carers : The case of rare disease patient-advocacy actors.

Open Date: 2013-05-01

Close Date: 2014-04-30

Grant: Close

The Cuban blogosphere: A leak of voice from an authoritarian regime to a global public

Open Date: 2012-01-01

Close Date: 2013-01-01

Articles (10)

Year:

2025

We investigate the relationship between platform visibility and meaning making. Drawing on a quanti-quali investigation of hashtag practices in a cross-platform dataset, we explore how hereditary cancer is constructed, as an issue, on social media. Our findings provide strong evidence of significant variations across Instagram, TikTok and Twitter, with hashtag practices on these platforms tapping into platform-specific understandings of hereditary cancer: a pink ribbon issue on Instagram, the opportunity for non-normative exposures of bodies, pain and acceptance on TikTok and a scientific matter on Twitter. Platforms do not dictate choice, but their encounter with user interpretations, given similar material constraints (hashtag technology), lead to very different affordances. These affordances shape practices and, ultimately, meaning making. While raising concerns on the impact platform visibility might have on experiences and understandings of hereditary cancer, our work suggests broader implications for how we imagine and respond to the issues we care about.

Year:

2024

Year:

2024

Year:

2023

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2021

Year:

2021

Year:

2021

Year:

2021

Year:

2020

Year:

2020

Collaborators (2)

Hannah Ditchfield

University of Sheffield

UNITED KINGDOM
View details

Paul Reilly

Senior Lecturer in Communications, Media and Democracy

University of Glasgow

UNITED KINGDOM
View details
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