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Alison McEwen

University of Sydney

Australia

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Research Interests

Health Communication

30%

Maternal And Child Health

30%

Medical Science

80%

Genetic Counseling

30%

Family-centered Care

30%

Reproductive Medicine

30%

Genomic

20%

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Articles23

Parents' perspectives on conversations about prognosis and an assessment of prognostic information available online: A mixed-methods study.

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Year:

2025

Race, ethnicity, and ancestry reporting in genetic counseling research: A focused mapping review and synthesis.

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Year:

2025

A scoping review of the development of genetic counseling practices in Asia

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Year:

2025

Generative AI and the profession of genetic counseling

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Year:

2025

Developing global consensus about core knowledge and skills for genetic counselor education

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Year:

2025

An Explorative Qualitative Study of the Role of a Genetic Counsellor to Parents Receiving a Diagnosis After a Positive Newborn Bloodspot Screening

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Year:

2025

How can a community of practice support healthcare professionals navigating new roles? a case study of genetic counsellors employed to work in medical specialities.

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Year:

2025

Supervision for genetic counselors: The role of career‐long supervision to develop resilient practitioners

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Year:

2025

Embedding simulation in genetic counselor education from the first week of training: Learning outcomes, standardized clients, and students' satisfaction.

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Year:

2024

Becoming agents for genomic change: genetic counsellors' views of patient care and implementation influences when genomics is mainstreamed.

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Year:

2024

A mixed-methods assessment of the Australasian Society of Genetic Counselors (ASGC) Mentor Program

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Year:

2024

Fostering Hope and Acknowledging Uncertainty: Meeting Parents’ Needs and Preferences When Communicating Prognosis in Genetic Neurodevelopmental Conditions

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Year:

2024

Parents' preferences for receiving and discussing prognostic genetic information regarding their children's neurodevelopmental condition: A qualitative study

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Year:

2024

Defining core outcomes of reproductive genetic carrier screening: A Delphi survey of Australian and New Zealand stakeholders.

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Year:

2023

Special Issue: "Genetic Counseling and Genetic Testing in Precision Medicine".

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Year:

2023

A survey of genetic and palliative care health professionals' views of integrating genetics into palliative care.

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Year:

2023

(In)visibility of LGBTQIA+ people and relationships in healthcare: A scoping review.

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Year:

2023

Free Online Decision Tools to Support Parents Making Decisions About Their Children's Chronic Health Condition: An Environmental Scan

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Year:

2023

Young-onset dementia: A systematic review of the psychological and social impact on relatives.

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Year:

2023

Genetic Counsellors play a key role in supporting ethically responsible expanded universal carrier screening

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Year:

2023

Australasian Genetic Counselors’ Perceptions of Their Role in Supporting Clients’ Behavior Change

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Year:

2022

Toward genetic counseling practice standards for diagnostic testing in amyotrophic lateral sclerosis and frontotemporal dementia

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Year:

2022

Genetic counseling and diagnostic genetic testing for familial amyotrophic lateral sclerosis and/or frontotemporal dementia: A qualitative study of client experiences

Article Link

Year:

2022

Collaborators10

Joshua Pate

University of Sydney

AUSTRALIA

Megan Best

Honorary Associate Professor

University of Sydney

AUSTRALIA

Lisa Dive

Lecturer

University of Sydney

AUSTRALIA

Toby Newton-John

University of Technology

AUSTRALIA

Lucinda Freeman

Head of Discipline, Genetic Counselling

University of Sydney

AUSTRALIA

Ashley Crook

Macquarie University

AUSTRALIA

Chris Jacobs

Associate Professor in Genetic and Genomic Counselling

University of Surrey

UNITED KINGDOM

Stephanie White

AUSTRALIA

Arianne Verhagen

University of Sydney

AUSTRALIA

Erin Turbitt

University of Sydney

AUSTRALIA

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