Deborah Mascalzoni

Uppsala University

Sweden

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Articles (14)

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2024

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2023

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2022

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2022

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2021

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2021

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2021

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2021

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2021

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2021

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2021

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2021

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2021

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2020

Collaborators (15)

Courtney Thaxton

Assistant Professor

University of North Carolina at Chapel Hill

UNITED STATES

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Cristian Pattaro

ITALY

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Dianne Nicol

Distinguished Professor Emerita

University of Tasmania

AUSTRALIA

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Emily Forbes

University of Colorado Anschutz Medical Campus

UNITED STATES

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Nisha Shah

University of Oxford

UNITED KINGDOM

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Adrian Thorogood

LUXEMBOURG

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Kelly Nudelman

Assistant Research Professor

Indiana University School of Medicine

UNITED STATES

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Esther Sammler

UNITED KINGDOM

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Josepine Fernow

Uppsala University

SWEDEN

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Álvaro Mendes

PORTUGAL

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Charlotta Ingovldstad Malmgren

Karolinska Institutet

SWEDEN

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Katherine Morley

King’s College London

UNITED KINGDOM

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Jerome Atutornu

Senior Lecturer in Diagnostic Radiography

UNITED KINGDOM

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Torsten Voigt

Professor and Chair of Technology and Diversity Program

RWTH Aachen University

GERMANY

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Emilia Niemiec

Lund University

SWEDEN

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Deborah Mascalzoni

Research Interests

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Articles (14)

Ethical and social reflections on the proposed European Health Data Space

Participant perspective on the recall-by-genotype research approach: a mixed-method embedded study with participants of the CHRIS study

Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process

Ethical, legal and social/societal implications (ELSI) of recall-by-genotype (RbG) and genotype-driven-research (GDR) approaches: a scoping review

Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants

Governing health data across changing contexts: A focus group study of citizen's views in England, Iceland, and Sweden.

Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol.

The commercial genetic testing landscape for Parkinson's disease.

Prevalence and determinants of serum antibodies to SARS-CoV-2 in the general population of the Gardena valley.

Balancing scientific interests and the rights of participants in designing a recall by genotype study

Preferences of the Public for Sharing Health Data: Discrete Choice Experiment

Task matters - challenging the motor system allows distinguishing unaffected Parkin mutation carriers from mutation-free controls.

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

Collaborators (15)

Courtney Thaxton

Cristian Pattaro

Dianne Nicol

Emily Forbes

Nisha Shah

Adrian Thorogood

Kelly Nudelman

Esther Sammler

Josepine Fernow

Álvaro Mendes

Charlotta Ingovldstad Malmgren

Katherine Morley

Jerome Atutornu

Torsten Voigt

Emilia Niemiec

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