Jenny van der Steen

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Associate Professor

Leiden University Medical Center

Netherlands

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About

Jenny van der Steen is an Associate Professor at Leiden University Medical Center in the Netherlands. Her research primarily focuses on end-of-life care, dementia care, and advance care planning, as highlighted in her recent publications. She has explored topics such as spiritual support for individuals affected by dementia and the complexities of decision-making in care practice. Dr. van der Steen's work seeks to improve quality of life for patients and their families through innovative research methodologies.

Recent Grants

Grant: Close

Attempts to Control the End of Life in People with Dementia: Two-level Approach to Examine Controversies

Open Date: 2018-12-01

Close Date:

Grant: Close

Netherlands Organisation for Scientific Research (NWO)

Open Date:

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Grant: Close

Netherlands Organisation for Scientific Research (NWO)

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2022

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2022

Collaborators (17)

Yvette van der Linden

Leiden University Medical Center

NETHERLANDS

Jenny van der Steen

Research Interests

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About

Recent Grants

Articles (20)

Identifying instruments for measuring agitation and other non-cognitive symptoms in people with advanced dementia in residential settings: a scoping review protocol

Navigating Ambiguity and Uncertainty in End-of-Life Care Research Practice

Increasing transparency of decision making in research practice: adding value or just more red tape?

Optimizing Advance Care Planning in Dementia: Recommendations From a 33-Country Delphi Study

Tensions in advance care planning with dementia: Time for a good-enough laid-back approach?

Spiritual Support for People Affected by Dementia: A Scoping Review

A family affair: Repeated interviews with people with dementia and a euthanasia wish and their families

Mapping advance care planning and advance directives in Latin America

Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers

Development and Validation of a Short Version (PAIC6) of the Pain Assessment in Impaired Cognition Scale

Interventions to Promote End-of-Life Conversations: A Systematic Review and Meta-Analysis

Family involvement in euthanasia or Physician Assisted Suicide and dementia: A systematic review

Measuring Pain in Aphasia: Validity and Reliability of the PACSLAC-D

Talking about Meaning and Loss with Relatives of Persons with Dementia: An Ethnographic Study in a Nursing Home

Implementing Palliative Care Teams Specialized in Dementia in Two Countries: Experiences of Failure and Success

Assessment of patient symptom burden and information needs helps tailoring palliative care consultations: An observational study

Evaluating the feasibility, experiences, facilitators of and barriers to carers and volunteers delivering Namaste Care to people with dementia in their own home: a qualitative interview study in the UK and the Netherlands

Evaluating a partnership model of hospice enabled dementia care: A three-phased monitoring, focus group and interview study

The perspectives of people with dementia on their future, end of life and on being cared for by others: A qualitative study

Implementing a Personalized Integrated Stepped-Care Method (STIP-Method) to Prevent and Treat Neuropsychiatric Symptoms in Persons With Dementia in Nursing Homes: Protocol for a Mixed Methods Study

Collaborators (17)

Yvette van der Linden

Hanneke Smaling

Lieve Van den Block

Arwen H. Pieterse

Suzanne Timmons

Lex Bouter

Robbert Huijsman

Margaretha Nienke Slagboom

Ralph de Vries

Jos Schols

Joanne Reid

Ria Reis

Jean-Bernard Mabire

Felicity Hasson

Paola Berchialla

Irene Hartigan

Kevin Brazil

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