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Sandra Soo-Jin Lee

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Chief, Division of Ethics and Professor of Medical Humanities and Ethics

Columbia University

United States

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Recent Grants

Grant: Close

ELSI.hub: National Center for ELSI Resources and Analysis

Open Date: 2019-08-13

Close Date: 2024-05-31

Grant: Close

ELSI Biennial Congress

Open Date: 2019-07-15

Close Date: 2024-06-30

Grant: Close

The Ethics of Inclusion: Diversity in Precision Medicine Research

Open Date: 2018-09-20

Close Date: 2022-06-30

Grant: Close

The Ethics of Inclusion: Conceptualizing Diversity in Genomics Research

Open Date: 2018-08-15

Close Date: 2021-07-31

Grant: Close

Beyond Consent: Patient Preferences for Governance of Use of Clinical Data and Samples

Open Date: 2014-09-26

Close Date: 2017-08-31

Articles (21)

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Collaborators (12)

Melanie Jeske

Assistant Professor

Baylor College of Medicine

UNITED STATES

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Galen Joseph

University of California

UNITED STATES

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Jenny Reardon

Professor

University of California, Santa Cruz

UNITED STATES

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Sara Goering

University of Washington

UNITED STATES

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Faith Fletcher

Associate Professor

Baylor College of Medicine

UNITED STATES

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Nicole M. Foti

Stanford University

UNITED STATES

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Devan Duenas

Seattle Children's Research Institute

UNITED STATES

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Aliya Saperstein

Stanford University

UNITED STATES

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Ubaka Ogbogu

Professor and Associate Dean Research

University of Alberta

CANADA

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Mildred K. Cho

Stanford University

UNITED STATES

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Nanibaa' Garrison

Associate Professor

University of California, Los Angeles

UNITED STATES

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Vardit Ravitsky

CANADA

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Sandra Soo-Jin Lee

Research Interests

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Recent Grants

Articles (21)

Bioethicists Must Push Back Against Assaults on Diversity, Equity, and Inclusion

ELSIcon2024: Reimagining the Benefits of Genomic Sciences

The All of Us Research Program’s Social Media Outreach to Underrepresented Populations: Mixed Methods Analysis

Racial Equity, Diversity and Inclusion in Bioethics: Recommendations from the Association of Bioethics Program Directors Presidential Task Force

From Human-in-the-Loop to Human-in-Power

What and For Whom Is Bioethics?

Spotlighting Structural Constraints on Decisions About Participation in Genomic and Precision Medicine

Understanding the Gap: A Cross-Sectional Survey of ELSI Scholars’ Dissemination Practices and Translation Goals

Conflating race and ancestry: Tracing decision points about population descriptors over the precision medicine research life course

Pangenomics: prioritize diversity in collaborations

Innovating for a Just and Equitable Future in Genomic and Precision Medicine Research

Unbounding ELSI: The Ongoing Work of Centering Equity and Justice

Individualized interventions for rare genetic conditions and the research-treatment spectrum: Stakeholder perspectives

Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity

Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers

The Epistemological Danger of Large Language Models

Strategies of inclusion: The tradeoffs of pursuing “baked in” diversity through place-based recruitment

Obligations of the “Gift”: Reciprocity and Responsibility in Precision Medicine

Response to Open Peer Commentaries: Distinguishing the “Gift” from “Donation” as a Path toward Reciprocity and Relational Ethics

Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study

Is precision medicine relevant in the age of COVID-19?

Collaborators (12)

Melanie Jeske

Galen Joseph

Jenny Reardon

Sara Goering

Faith Fletcher

Nicole M. Foti

Devan Duenas

Aliya Saperstein

Ubaka Ogbogu

Mildred K. Cho

Nanibaa' Garrison

Vardit Ravitsky

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