Tessel Rigter
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Articles (7)
Background: Previous studies have suggested that information offered by sellers of health-related direct-to-consumer genetic tests (DTC-GTs) is often incomplete, unbalanced, or too difficult to understand. The extent to which this is the case for sellers accessible to Dutch consumers has not previously been studied. Methods and Goals: The present study aimed to assess the completeness, balance, readability, and findability of informational content on a selection of websites from several health-related DTC-GT sellers accessible to Dutch consumers. An in-depth content analysis was performed based on a recently published checklist outlining key items for policy guidance regarding DTC-GT services. Results: The information provided by sellers did not equally cover all aspects relevant to health-related DTC-GT service provision. The provided information was slightly unbalanced, with benefits of health-related DTC-GT usage being overemphasized compared to its risks and limitations. The readability of the provided information was low, on average requiring college education for proper understanding. A findability analysis showed that information concerning all themes is overall relatively evenly distributed across analyzed sellers’ websites. Conclusions: Information provision by assessed health-related DTC-GT sellers is suboptimal regarding completeness, balance, and readability. To better empower potential consumers to make an informed decision regarding health-related DTC-GT usage, we advocate industry-wide enhancement of information provision.
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2024
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2023
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2022
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2021
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2021
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2021
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2020
Collaborators (5)
Corrette Ploem
University of Amsterdam
Patrick Souverein
Utrecht University
Martina Cornel
Professor of Community Genetics and Public Health Genomics
Amsterdam UMC Locatie VUmc
Marc Van Mil
University Medical Center Groningen
Jesse Swen
Full professor of clinical pharmacy, in particular translational pharmacogenetics
Leiden University Medical Center
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